Experiences Of Young People Research Articles

Making Sense of Change: Emotive-Cognitive Reframing of Young People in Post-crisis Spain

This article explores how people interpret deep transformations, how they integrate them into their everyday meaning-making and what role emotion work plays therein. To do so, the article draws on the experiences of young people (n=68) in post-crisis Spain and their narratives of change. In the wake of the severe economic crisis of 2008, many of them had lost their jobs as well as their future prospects. They experienced a mismatch between their expectations of their (working) life and the actual opportunities on the precarious labour market. Disappointed expectations and crumbling future prospects made it necessary for them to search for explanations and coping strategies. The article proposes the concept of emotive-cognitive reframing to capture the ways in which the young people adapted their emotions, ideas and expectations and the different forms and directions this could take. It shows that emotive-cognitive reframing was a complex and embodied process of emotional and cognitive work in which existing patterns of explanation were questioned and partly replaced by new ones. If these explanations were individualistic in nature, people considered their emotions and how they dealt with them to be a personal matter. In this case, emotion work was more about appeasing and suppressing emotions rather than channelling them into action. If the explanations were systemic, though, emotion work consisted primarily of turning emotions inside out and redirecting them from the individual towards external actors and structural conditions laying the seeds for collective mobilisation.

Supporting the mental health of young people from ethnically diverse groups during the transition from primary to secondary school

Background: The transition from primary to secondary school is a pivotal period in young people’s lives and can significantly impact their mental health. However, the experiences of young people from ethnically diverse groups during this crucial period of physical, social and emotional development are under-researched, limiting the evidence base for meaningful support. Objectives: This study explored the experiences of young people from ethnically diverse groups during primary-secondary school transition and co-designed ideas for culturally sensitive support. It explicitly focused on the intersection between ethnic and cultural identity, primary-secondary transition and mental health. Methods: The study employed participatory design to collaborate with seven young people from ethnically diverse groups and a peer researcher. Four online workshops mapped participant experiences and ideas concerning the primary-secondary transition, identity and mental health. These were developed into implications for practice, policy and research. Results: Participants highlighted feeling unprepared for the transition, with some experiencing poor mental health and difficulty navigating their ethnic and cultural identity during this time. Participants’ ideas for future transition experiences included: supporting a longer transition period, schools promoting diversity among students and staff, enabling education on ethnicity and culture, breaking stereotypes, enabling mutual learning among staff and students and enabling an open and caring environment to support mental health. Conclusions: The study provides an in-depth understanding of experiences of young people from ethnically diverse groups during primary-secondary transition and suggests ways of supporting multi-faceted transitions and mental health, with a key focus on ethnic and cultural identity formation.

Inequalities in emergency care use across transition from paediatric to adult care: a retrospective cohort study of young people with chronic kidney disease in England.

Sociodemographic inequalities in emergency secondary care usage were evident in this cohort across the transition period, independent of age, with some variation between admissions and A&E use, and evidence of effect modification by transfer. Such inequalities likely have multifactorial origin, but importantly, could represent differential meetings of care needs. • In chronic kidney disease (CKD), transfer from paediatric to adult healthcare is associated with declining health outcomes. • Known differences in CKD outcomes by sociodemographic factors have limited prior exploration in the context of transfer. • Population-level data was used to examine the impacts of transfer and sociodemographic factors on unplanned secondary care utilisation in CKD. • Healthcare utilisation trends may not reflect known CKD pathophysiology and there may be unexplored sociodemographic inequalities in the experiences of young people across transfer.

An interpretative phenomenological analysis of eating behaviors and mealtimes experiences of young people with Tourette syndrome

ABSTRACT Little is known about how young people with Tourette Syndrome (TS) perceive their own eating behaviors and subsequent effects on their mealtimes. Six adolescents aged 12–14 years with a self-reported clinical diagnosis of TS took part in semi-structured interviews. Interpretative Phenomenological Analysis of the transcribed interviews revealed central experiences of mealtime challenges in relation to their tics. Tics were described as creating functional mealtime challenges, often interrupting their ability to eat, drink and be seated. While sensory-based food preferences were noted, including the need for food to be plated a certain way, these preferences were not viewed as being problematic. Adolescents taking Aripiprazole reported dissatisfaction with the appetite stimulating side effects and subsequent weight gain. Eating out-of-home was found to be especially challenging, with some of the young people reporting feeling self-conscious and stigmatized when eating out-of-home, including at friends’ houses. There is a need for clinical guidance around eating and mealtimes, to meet the specific need of young people with TS and their families. Support from clinicians could entail monitoring changes in eating patterns resulting from tics and/or from side effects of medication, as well as in helping young people to manage any discomfort associated with eating out.

Participation experiences of young people with cerebral palsy in key life situations: A qualitative study.

To explore the participation experiences of adolescents and young adults with cerebral palsy (CP) in key life situations of young adulthood and investigate the impact of a government-funded, disability insurance scheme on participation and health service access. We conducted a qualitative descriptive study using semi-structured interviews. Sixteen young people with CP (aged 16-30 years; mean age = 24 years 4 months) participated. Interviews were audio-recorded and transcribed verbatim before thematic analysis. An overarching theme of 'branching out into adulthood' was identified. Participants described early adulthood as a time of change, choice, and challenge. The sub-themes were: (1) making sense of my CP as an adult; (2) people's attitudes towards disability and the impacts on me; (3) roadblocks and workarounds; and (4) participation at the time of the COVID-19 pandemic. Participants reported complex views on the new disability insurance scheme. While access to services and support increased, participants experienced significant difficulty negotiating appropriate funding, resulting in frustration and reduced confidence in the scheme. Young people with CP experience complexity as they participate during young adulthood. Alongside exploring how their identity is intertwined with having CP, they face significant barriers to participation when navigating relationships, accessing services, and being involved in the community.

After COVID-19: preparing staff for future surges in respiratory illness in children and improving well-being.

The coronavirus disease 2019 (COVID-19) pandemic was a challenging experience for children and young people's services, and the workforce. The Valuing All Staff Together programme was a one-year project hosted by the North West Paediatric Critical Care, Surgery in Children, Long Term Ventilation Operational Delivery Network to support teams caring for children and young people to reflect on their experiences of the COVID-19 pandemic. Using an online survey, focus groups and interviews, it gave staff the opportunity to explore and understand the effects of the pandemic and the subsequent surge in demand, including how these affected services and the emotional health and well-being of staff. This would enable better preparation for future surges in respiratory illness in terms of learning, training and development. This article describes the programme's aim, method and findings, and the main recommendations for practice.

The Emotional Impact of a Cancer Diagnosis: A Qualitative Study of Adolescent and Young Adult Experience.

The biographical disruption that occurs in adolescents and young adults following a cancer diagnosis can affect various important psychosocial domains including relationships with family and friends, sexual development, vocational and educational trajectories, and physical and emotional wellbeing. While there is evidence of the physical impact of cancer during this period, less is known about the impact on emotional wellbeing and especially on the barriers for young people accessing help and support. We aimed to obtain a more in-depth understanding of young people's experiences of their diagnosis, treatment, psychological impact, and range of resources they could or wanted to access for their mental health. We conducted an in-depth qualitative study using semi-structured interviews with 43 young people who had developed cancer aged 16 to 39 years and were either within 6 months of diagnosis or 3-5 years after treatment had ended. Framework analysis identified three themes: the emotional impact of cancer (expressed through anxiety, anger, and fear of recurrence); personal barriers to support through avoidance; and support to improve mental health through mental health services or adolescent and young adult treatment teams. We showed the barriers young people have to access care, particularly participant avoidance of support. Interrupting this process to better support young people and provide them with flexible, adaptable, consistent, long-term psychological support has the potential to improve their quality of life and wellbeing.

What Is the Patriarchy Doing in Our Bed? Violent Sexual-Affective Experiences Among Youth

Abstract Introduction In the context of a qualitative research study on sexual practices and risk among youth, repeated accounts of non-consensual sex and other forms of gender-based violence emerged. Drawing from that research, this article explores the influence of the patriarchal system on sexual-affective relationships among young people aged 18–25 years residing in Andalusia, Spain. Methods The fieldwork was conducted between March and May 2019. Six discussion groups were held with 39 participants segmented by gender, level of education, sexual orientation, and length of relationships. Results The results show that patriarchal constructs related to female body standards and the subordination of women’s pleasure to men’s, in addition to blackmail and sexual violence, continue to pervade the sexual-affective imaginaries and experiences of young people. Additionally, the participants’ discourses on patriarchal and sexual violence are interwoven with critical feminist points of view, revealing timid signs of resistance to the patriarchal order. Conclusions Women navigate inequality by assuming, negotiating, or rebelling against the different types of violence to which they are exposed in their intimate relationships. In their sexual-affective relationships, young people today are confronted with numerous tensions and contradictions. The discourse of females shifts between their right to seek pleasure and self-blaming, while trying to overcome feelings of shame and dismantling aesthetic standards or empowering themselves and claiming orgasm equality. Policy Implications The findings are applicable for the prevention of violence against young women in relationships of trust.

Exploring special guardianship: experiences of school belonging from the perspectives of the young people, guardians, and designated teachers

ABSTRACT This research explores school belonging (SB) experiences of young people in the UK who live under the legal status of a special guardianship order (SGO). A high proportion of these young people have had adverse childhood experiences, some are care experienced. This research uses case study to triangulate the perspectives of the young people, their guardians, and designated teachers (DTs) to develop understanding of school belonging, and considers the implications for educational psychologists (EPs), school policy, and staff practice. Seven case studies were undertaken, each including a young person, their guardian/s and their school DT, resulting in 21 semi-structured interviews. A hierarchical structured approach was used in all adult interviews, and personal construct psychology techniques were used in young people’s interviews. Individual case data were analysed using thematic analysis. Superordinate themes generated included identity, fitting in, diagnosis, agency, individuality and association, school’s community connection, systems as obstacles, relationship and connection to others, protection and autonomy, school processes, support and features, and organisational change. The findings emphasise the broad influences on the school belonging of this group, including individual characteristics, peer and staff relationships, school processes, and the communication and interaction between school, home, and the wider community.

Early Post-Transplant Adaptation Experience in Young and Middle-Aged People With Kidney Transplant in China: A Qualitative Study.

Successful adaptation to post-transplantation life in patients who have undergone kidney transplants is crucial. The psychosocial needs of people with kidney transplants are closely related to the health of the transplanted kidney. If transplant recipients cannot adapt to the effects of the transplant, their physical and mental health will be seriously impaired. The purpose of this study was to explore the early post-transplant adaptation experience of young and middle-aged persons with kidney transplants in China based on the Roy adaptation model. A qualitative descriptive study was conducted using semi-structured interviews. Fifteen young and middle-aged persons with kidney transplant were recruited from a tertiary hospital in China between September 2022 and March 2023 through purposive sampling. Data were analyzed using a thematic analysis approach. This study identified 4 themes: (1) "two-sided" changes in physiological functioning, (2) "dawn and darkness" (conflicting perceived emotions about the future), (3) role functioning adaptation conflict and impairment, and (4) social isolation and the challenges of coping. This study found that early post-transplant adaptation in young and middle-aged people with kidney transplant included both positive and negative experiences, and these findings can provide new insights into research related to successful post-operative adaptation.

Young people's experiences of physical activity insecurity: a qualitative study highlighting intersectional disadvantage in the UK

BackgroundIntersecting socioeconomic and demographic reasons for physical activity (PA) inequalities are not well understood for young people at risk of experiencing marginalisation and living with disadvantage. This study explored young people’s experiences of PA in their local area, and the associated impacts on opportunities for good physical and emotional health and wellbeing.MethodsSeven local youth groups were purposefully sampled from disadvantaged areas across urban, rural and coastal areas of England, including two that were specifically for LGBTQ + young people. Each group engaged in three interlinked focus groups which explored young people’s perceptions and lived experience of PA inequalities. Data were analysed using an inductive, reflexive thematic approach to allow for flexibility in coding.ResultsFifty five young people aged 12–21 years of different sexualities, gender and ethnicity took part. Analysis yielded four themes: PA experiences across spaces; resigned to a lack of inclusivity and ‘belonging’; safety first; complexities in access and accessibility. Young people felt more comfortable to be active in spaces that were simpler to navigate, particularly outdoor locations largely based in nature. In contrast, local gyms and sports clubs, and the school environment in general, were spoken about often in negative terms and as spaces where they experienced insecurity, unsafety or discomfort. It was common for these young people to feel excluded from PA, often linked to their gender and sexuality. Lived experiences or fears of being bullied and harassed in many activity spaces was a powerful message, but in contrast, young people perceived their local youth club as a safe space. Intersecting barriers related to deprivation, gender and sexuality, accessibility, disability, Covid-19, affordability, ethnicity, and proximity of social networks. A need emerged for safe spaces in which young people can come together, within the local community and choose to be active.ConclusionsThe overarching concept of ‘physical activity insecurity’ emerged as a significant concern for the young people in this study. We posit that PA insecurity in this context can be described as a limited or restricted ability to be active, reinforced by worries and lived experiences of feeling uncomfortable, insecure, or unsafe.

Experiences of young people growing up in a family with Huntington's disease: A meta-ethnography of qualitative research.

Huntington's disease is a genetic neurodegenerative condition with wide physical and psychological impacts. Children of a parent with the condition have a 50% chance of carrying the gene expansion and developing the condition themselves. This systematic review and meta-ethnography presents a synthesis of the qualitative research on the experiences of young people growing up in a family with Huntington's disease. The MEDLINE, PsycINFO, and CINAHL databases were systematically searched, and 13 papers met the inclusion criteria. Through the process of meta-ethnography, four themes were identified highlighting aspects of childhood that were stolen and fought for: thief of relationships, thief of self, thief of transparency, and search for reclamation. Within the themes, the complex challenges young people faced when growing up in a HD family were explored such as the impact of adverse childhood experiences and the possible effects of HD on attachment and social relationships. Clinical implications are considered, and recommendations are made for future research.

A Qualitative Study on Kerala Youth Diaspora

The experiences and challenges the Kerala youth diaspora face are poorly understood. While there is some research on migration and diaspora in Kerala, there is a need for more focused research on the experiences of young people in the diaspora. The Kerala youth diaspora also faces challenges, such as adapting to new cultures, dealing with discrimination, and maintaining their cultural identity. Many young Keralite struggles to balance their traditional values with the demands of a new environment, which can cause stress and anxiety. This research paper aims to address this gap by exploring the experiences of the Kerala youth diaspora and how they contribute to the development of Kerala and to examine the experiences of the Kerala youth diaspora and identify ways to support and engage with them. By engaging with the diaspora and understanding their experiences, this research paper can contribute to creating policies and programs that better meet their needs and support their engagement with Kerala. This can lead to a more inclusive and sustainable approach to development that leverages the potential of the Kerala youth diaspora and other diaspora communities.

Young people's priorities for the self-management of distress after stoma surgery due to inflammatory bowel disease: A consensus study using online nominal group technique.

The aim of this study was to gain consensus among young people with a stoma due to inflammatory bowel disease (IBD) on the priorities for the content of an intervention for the self-management of stoma-related distress. The current identification and management of distress in young people with a stoma is often suboptimal in clinical settings and there is a need for improved support resources. Two consensus group meetings were carried out via online video conferencing, using nominal group technique. Participants generated, rated on a Likert scale and discussed, topics for inclusion in a future self-management intervention. Nineteen young people, aged 19-33, with a stoma due to IBD took part in one of two group meetings. Participants were located across England, Scotland, and Northern Ireland. Twenty-nine topics were generated by participants, seven of which reached consensus of ≥80%, that is, a mean of ≥5.6 on a 7-point Likert scale. These were: receiving advice from young people with lived experience of stoma surgery; advice on/addressing concerns about romantic relationships, sex and intimacy; information about fertility and pregnancy related to stoma surgery; stoma 'hacks', for example, useful everyday tips regarding clothing, making bag changes easier and so forth; reflecting on and recognising own emotional response to surgery; tips on managing the stoma during the night; and processing trauma related to the illness and surgery journey. Findings extend previous research on young people's experiences of stoma surgery, by generating consensus on young people's priorities for managing distress related to surgery and living with a stoma. These priorities include topics not previously reported in the literature, including the need for information about fertility and pregnancy. Findings will inform the development of a self-management resource for young people with an IBD stoma and have relevance for the clinical management of stoma-related distress in this population. Three patient contributors are co-authors on this paper, having contributed to the study design, interpretation of results and writing of the manuscript. The study's Patient and Public Involvement and Engagement advisory group also had an integral role in the study. They met with the research team for four 2-h virtual meetings, giving input on the aims and purpose of the study, recruitment methods, and interpretation of findings. The group also advised on the age range for participants. The views of young people with a stoma are the central component of the study reported in this paper, which aims to gain consensus among young people with an IBD stoma on their priorities for the content of a resource to self-manage distress related to stoma surgery.

Young people's experiences of the Northern Rivers 2017 flood and its effects on their mental health.

To explore young people's (YP) experiences of catastrophic flooding in the Northern Rivers area of northern NSW in 2017 and its effect on their mental health. Content analysis of free-text survey responses (written responses to open questions, rather than selecting a response option). Northern Rivers NSW. YP aged 16-25 years who were Northern Rivers residents at the time of the 2017 flood. YP found their flood experience to be novel and challenging. They expressed worry, distress, anxiety, and worsened pre-existing mental health issues as a result of the flood. YP reported a number of primary stressors (inadequate preparedness, warning and support during the flood) and secondary stressors (loss/damage of property and possessions, financial strain and disruptions to daily life) which potentially contributed to poor mental health. Some YP reported positive outcomes from their flood experience, notably increased community connectedness and personal resilience. However, they also expressed concern for the future, particularly potential reoccurrence of extreme floods as well as climate change. YP conveyed a desire for better community involvement to improve preparedness for future floods and a clear motivation to take action on climate change. The flood was a challenging experience for YP which was commonly described as negatively affecting their mental health. Understanding what YP view as significant events or issues arising from their personal flood experience may help target support mechanisms and services to maintain their mental. More focus on community-based initiatives to improve disaster preparedness can support mental health in YP.

The experience of seeking and accessing help from mental health services among young people of Eastern European backgrounds: A qualitative interview study.

Most lifetime mental health problems (MHP) start before the age of 25. Yet young people-particularly those of minority backgrounds-often do not seek or access professional help. In the UK, young people of Eastern European (EE) backgrounds represent a large minority group; however, little is known about their experiences of MHP and help-seeking. In this study, we aim to understand the help-seeking process from the perspectives of EE young people. We used a qualitative study design with semi-structured individual interviews. The results were analysed using reflexive thematic analysis. Twelve young people (18-25 years) of EE backgrounds, living in Oxfordshire, UK, took part. All participants had experienced a severe MHP and were identified in the community. EE young people's experiences of MHP and help-seeking were driven by a sense of being caught between different cultures and simultaneously needing to navigate the potentially contrasting expectations of both cultures. This process was reinforced or tempered by the perceived continuing influence of young people's families, that is, families with more open views about MHP made it easier for young people to navigate through the process of help-seeking. Young people's internalised cultural and familial beliefs about MHP affected their decision-making when experiencing difficulties, their levels of trust in services, and perceived sense of resourcefulness and ability to cope. Recognising and responding to the cultural tension that young people of EE backgrounds may experience can help us to develop more accessible and inclusive mental health services.

Towards a critical pedagogy of trans-inclusive education in UK secondary schools

ABSTRACT School systems within the UK are embedded within cultures of normative gender narratives. Such cultures can create difficult environments for gender diverse young people which in turn contribute to poorer academic attainment and long-term health and wellbeing outcomes. In an attempt to understand how to foster better understanding within schools, we drew upon the lived experience of gender diverse young people. Using Interpretative Phenomenological Analysis (IPA), this research explored the experience of six transgender and non-binary young people who reflected on their experience of secondary education in the UK. Drawing on critical pedagogy as a theoretical framework, we found that: unsupportive school environments and relationships led to decreased mental health and feelings of Otherness; gender diversity was a contentious topic not found within curriculums; and teachers had the potential to create and foster positive experiences within a pedagogy of gender diverse affirmative partnership. To facilitate this, there is a need for institutional support allowing teachers to critically interrogate the structural embeddedness of cisgenderism in educational spaces, and within cultures of pathologised self-identified gender identities.

"It's On Your Shoulders Now" Transitioning from Child-to-Adult UK Cleft Lip/Palate Services: An Exploration of Young Adults' Narratives.

Treatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their treatment decisions. Evidence from the wider health literature indicates this transition can be challenging and that this population may require additional support. The present study explored young people's experiences of transition to adult care in the context of CL/P services, with the aim of identifying support needs and informing future service delivery. Individual semi-structured interviews were conducted with 15 individuals with CL/P (aged 17-25 years) to explore transition experiences. Interviews lasted an average of 69 min and data were analysed using reflexive thematic analysis. Four themes, with subthemes, were identified: 1) Readiness for Transition covered feelings of preparedness and how health professionals approached transition; 2) Making Decisions as an Adult described concerns and considerations when making treatment decisions; 3) Finding and Using Support, reflected the roles of caregivers and peers in developing self-advocacy; and 4) Reflections on Transition Care offered insight into how care could be improved. Individuals born with CL/P may experience challenges in becoming responsible for their own care and treatment decisions. The findings of this study indicate that a dedicated transition protocol may be beneficial, such that adolescents are prepared to confidently access and manage their care into adulthood. Opportunities for improvements in transition planning and provision are discussed.

Traditional bullying and cyberbullying at schools in Germany: Results of the HBSC study 2022 and trends from 2009/10 to 2022.

Bullying is a form of violence that is carried out repeatedly, with the intention of causing harm and with an imbalance of power between those involved. Bullying has serious negative effects on the mental health of adolescents and thus represents a significant health risk in childhood and adolescence. Based on data from the Health Behaviour in School-aged Children (HBSC) study from the survey year 2022 in Germany (N = 6,475), the prevalence of school bullying and cyberbullying among 11-, 13- and 15-year-olds in Germany was analysed. In addition, the prevalence of school bullying and cyberbullying was analysed as a trend from 2009/10 to 2022 (bullying) and from 2017/18 to 2022 (cyberbullying). Around 14 % of the learners surveyed reported direct experience of bullying at school, and around 7 % reported cyberbullying experiences as bullied and/or bullying victims. Adolescents who identified as gender diverse were particularly likely to report bullying experiences. School bullying decreased over time, but remained stable between 2017/18 and 2022. Cyberbullying, on the other hand, increased in 2022 compared to 2017/18. Experiencing bullying at school and online is an everyday experience for many children and young people, so there is still a need for the broad implementation of effective anti-bullying measures in schools.

Codesigning enhanced models of care for Northern Australian Aboriginal and Torres Strait Islander youth with type 2 diabetes: study protocol

IntroductionPremature onset of type 2 diabetes and excess mortality are critical issues internationally, particularly in Indigenous populations. There is an urgent need for developmentally appropriate and culturally safe models of...